Monday our social worker came for her visit for Lena's 1 yr report and for Reid's 1 month report (a little early). We enjoyed sharing about how well the kids are doing and talking to her about the trip. We won't see her again until the end of December for Reid's 6 month post-placement report. We celebrated Elijah and Jonah's 5th birthday and Lena's 1 year gotcha day! Due to the hot weather here, 3 of our 4 t-ball/baseball games were canceled and re-scheduled. We did get to watch Evan on Monday night at his baseball game. He was glad to be back playing.
Tuesday I took Reid to Children's Hospital for his labs. They had trouble getting the blood draw- they couldn't get enough from either arm. The lead had to come in and she got it. That was 3 tries though. Reid handled it like a pro. We then left and started heading back towards home. We were almost half way home when Rick called and said that we were missing a second appointment. Apparently there was some miscommunication there. We turned around and headed back to the hospital where we met Reid's hematologist, Dr. Scott, for the first time, as well as the nurse I have been in communication with for quite some time, Sandy. I learned that all hematologists have their own opinion and that they are all very different. I re-learned some things I had learned about on the thalassemia groups I am on, as well as some new things. They said Reid's spleen and liver are enlarged, but they also said they expected that. I wasn't given any numbers besides his hemoglobin level, which was an 8. That means he is more than ready for another transfusion. They said his other numbers looked good.
ble to get the IV with quite a few tries. We have one tough boy...kind of sad though how desensitized he is. After not being able to get it in either hand due to built-up scar tissue, they got it in his arm. He was given 287cc's of O+ which ran for just a tad over 3 hrs. from about 10 a.m. until 1 p.m. with no reaction afterwards....they keep them 30-45 minutes to make sure the patient doesn't have any reaction to the blood. Sometimes they have a fever or hives. I found our his ferritan (iron) levels are 3,180...normal is 10-60. His post transfusion hemoglobin level is 11.